invisible illness – M.E. myself and I

Time to Talk Day

March 2019: “The recommended 6-8 weeks of counselling will sort me right out as I try to process the fact we won’t be having children because of my health condition.” February 2020: “See you in a fortnight for the next session!” My favourite page from Charlie Mackesy’s book The Boy, the Mole, the Fox andContinueContinue reading “Time to Talk Day”

Silver Linings

I am a firm believer that more often than not, silver linings can be found on the edge of every dark grey cloud. I can’t make a blanket statement about how Every Cloud has a Silver Lining, but I do think there are there most of the time. I’ve spoken about this on M.E. myselfContinueContinue reading “Silver Linings”

Blue Sunday 2020

S A V E • T H E • D A T E I’m so excited to share that the Blue Sunday tea party for 2020 will be on Sunday 17th May. The venue is secured and now the planning can really start. Whether you can join me online or in Real Life, I can’tContinueContinue reading “Blue Sunday 2020”

M.E. doesn’t let me be ME

One of the hardest things about this restricted life is not being able to be the person I feel I truly am. On the inside I’m still the same, but the restrictions of M.E. do not allow me to act in the things I want to do. I’m talking about friendship really. I cannot beContinueContinue reading “M.E. doesn’t let me be ME”

Waiting

Every now and then, after a particularly exhausting time, I will rest and rest and rest, and be that little bit more sensible, and I will wait and wait and wait, for the day I wake up and don’t feel quite so wiped out anymore. Because I’ve rested so well and allowed myself to recover.ContinueContinue reading “Waiting”

Transformative

I don’t tend to live in ‘years’, if that makes any sense at all. Since being ill I’ve lived more hour by hour, or day by day, or week by week, or maybe month by month. Years are such big things. And decades…it doesn’t bear thinking about some days. But I’ll join in in sayingContinueContinue reading “Transformative”

You do you

Not so long ago I wasn’t feeling so good about Christmas time. Actually, I was feeling awful; completely dreading it. But my mum said something to me when I was trying to work out Christmas time logistics and I thought I’d share it here because it might help someone else who may be feeling overwhelmedContinueContinue reading “You do you”