Category Archives: Chronic illness

It’s a restricted life but it’s my life nonetheless. And I don’t want to hate it. I don’t want to wish it away. It is so far from how I imagined my life would be. And yet the lessons I’ve had to learn are things I’d likely have been oblivious to, had I not gotContinue reading “I don’t and won’t”

I am able, somehow, to spend the vast majority of my days focusing on the good; on what I have rather than what I’ve lost. On what I can do, rather than what I can’t. I’m not entirely sure how I do it. I think it’s just the way I’m wired. But you cannot focusContinue reading “Black Hole”

In October I got some moments of fresh air in amongst the rest and recovery and recuperation (and, frankly, the suffering.) We travelled an hour from home to stay in Clumber Park, Nottinghamshire. It was all the better for it never been a given that I would get there. Autumn passed by last year withoutContinue reading “An Autumn Adventure”

CW: Disability benefit claims process I wish others would accept, like I try to do, that it is now highly unlikely that I will make a full recovery. I found out last year that, like a lot of people, my Personal Independent Payment (PIP) claim had been extended due to the pandemic. Some people nowContinue reading “Jumping through hoops”

If you can’t treat or cure a patient… charge them for a treatment plan where they “retrain their brains” to heal their physical health condition. Place as much focus as possible on their debilitating physical symptoms being a result of childhood trauma. If/when it doesn’t work, blame the patient for not doing the treatment correctly.Continue reading “If you can’t fix them, fail them”

First, this year’s Blue Sunday Tea Party For M.E. raised £21,000. Then so many of you nominated me for several WEGO health awards. And then! I found out I was one of 96 finalists despite there being 21,000 nominations worldwide! Next, my name was put forward a few times for this year’s Pride of BritainContinue reading “Lovely stuff!”