Category Archives: Chronic illness

Before we know it, it’ll be May again and therefore M.E. Awareness week again, and therefore time for Blue Sunday and the Tea Party For M.E. again. So I’ve been beavering away already to get everything done at the sensibly slow pace I go at. For a long time I have wanted to have BlueContinue reading “Blue Sunday t-shirts!”

10pm tonight marks 34 years since I was born. Birthdays can be complex old things when you’re chronically ill. There aren’t enough hours in the day to expand of that comprehensively. When you feel like your life froze somewhat when you became unwell, the passing of time is a strange thing. I still very muchContinue reading “34 today”

Something I have felt for the duration of my time with M.E. is how childlike having to live with these restrictions makes me feel Not only is it a lack of independence and the reliance on other people, but the effects that cognitive impairment have, mean that most activities associated with no longer being aContinue reading “Childlike”

Just wondering how much of my life is spent stopping myself from doing the things I want to do. I wanted to try to do some baking by myself today. I wanted to spend my precious energy on something nice; on something I haven’t been able to do in a very long time. But IContinue reading “Tight leash”

For the first time since August 2020 I have been able to use my mobility scooter. And let me tell you it was the most glorious thing. Since July I’ve been feeling like I might be well enough to get back behind the wheel, so to speak. But I have been in this game longContinue reading “Scoot scoot”

Something I still can’t get used to is how so many people who see me functioning at a decent level, apply the functional version of me that they see for that very short period of time, to the rest of my life. They see me because I am functioning at a decent enough level. ThoseContinue reading “Slowly, slowly catchee monkey”

We went out for our first meal in a really long time recently. Worse-than-usual health and remaining appropriately cautious with the coronavirus meant years had passed since we last ventured in to a restaurant together. But the conditions were as good as they could be and so we went out to celebrate our fifth weddingContinue reading “Seen”