“Tired: weary, bored or impatient with, uninteresting because overfamiliar” Tired of signing petitions to get M.E. taken seriously. Tired of begging people to remain cautious of covid because of the risk of Long Covid. Tired of hearing of severely affected patients being left to die. Tired of the stigma that still rages around M.E. TiredContinue reading ““Tired: weary, bored or impatient with, uninteresting because overfamiliar””
Category Archives: Chronic illness
Worthy of pride
One thing that illhealth has given me is the chance to feel proud of myself every day. I don’t always take the opportunity to do so; comparing myself and my body and my productiveness to pre-illness levels still gets in the way even after all this time. But more often than not I can findContinue reading “Worthy of pride”
Fundraising Packs – available from 4th March at 12pm
Fundraising Packs for Blue Sunday 2023 ❗️Available from 4th March at 12pm I’m so delighted to share that Hannah at Sunshine Makes and Bakes Sunshine makes and bakes has worked her magic again and has created the loveliest Fundraising Pack for your Tea Parties For M.E. to use on Blue Sunday. As we’ve done inContinue reading “Fundraising Packs – available from 4th March at 12pm”
Imbalance
Friendship is a two way thing. So what happens when one party becomes unwell & is often too poorly to keep in touch? Something that has always seemed controversial to some people around me, is that I use social media yet claim to be too unwell to message them. This was something I put toContinue reading “Imbalance”
3 months to go
A (rather slow) one woman marketing campaign! My annual fundraiser Blue Sunday is 3 months away but I have already made a huge dent in the work that needs doing between now and then. This all started back in 2013. I had wanted to mark M.E. Awareness week in some way but there wasn’t anythingContinue reading “3 months to go”
Home from home
My health places restrictions on the lives of those around me. This isn’t self depreciation; it’s fact. So since moving in with my now-husband, I have gone to stay with my parents for a night or longer, for what is probably ‘respite care’ but we just call it a little holiday. It’s really lovely. It’sContinue reading “Home from home”
Daring to do
I think it’s brave to ‘dare to Do’ when you live with this illness. To dare to give something a go when your symptoms allow; knowing that there will likely be unsavoury consequences, but always hoping that maybe this time they won’t be so bad. I didn’t necessarily make the wrong choice today. I justContinue reading “Daring to do”
M.E. myself and I 