Category Archives: Chronic illness

Today marks 11 years since my first medical appointment to begin investigations into what was happening to my body. Living with #ME/CFS for any length of time is too long. I’ve had to live with it for 11 years. I therefore deserve cake. You know me. I don’t let the anniversary of me losing myContinue reading “‘Cheers’ to 11 years!”

The progress I have made cannot be measured in how far I can walk, or how long I can be out of bed for. Well, it can, but you’d likely say that there’s been no progress at all. But when you look at me as a person that’s where the growth and the progress isContinue reading “A different kind of progress”

I got to the seaside. And! I put my feet in the sea more than once! At the end of August I went on my holidays with my family for a week by the sea. The journey was my longest in a year (when we came to the same place at the end of AugustContinue reading “A breath of fresh (sea) air”

If you’re new to the ME/CFS community, it may be increasingly apparent that we aren’t treated all that well (no pun intended!) This week we were dealt the latest blow of an onslaught that has been ongoing for decades. Before I begin, lets remind ourselves that M.E has been recognised by the World Health OrganizationContinue reading “Not so NICE”

If, like I sometimes do, you wish your partner/parent had better than your illhealth allows, please remember that the person who deserves better most is, in fact, you. The impact of my health on others is so far-reaching that I sometimes forget that it is me who is impacted most. He’s been going solo toContinue reading “It is you who deserves better most”

There is a balance to be found between offering others hope and not being so far up your own arse that you neglect to see progress as the privilege it is. I don’t know if I’m just bitter and twisted after 10 years, but seeing people who have seen amazing improvement tell me and othersContinue reading “Progress is a privilege”

I’ve been trying for weeks to write something for Severe M.E. Awareness Day which is tomorrow. Severe M.E. Awareness Day is on the 8th August as it was Sophia Mirza’s birthday. Sophia died in 2005, and is said to be the first patient in the UK to have M.E. listed as the cause of death.Continue reading “Severe M.E. Awareness – 8th August”