Category Archives: Chronic illness

There will come a time where you’ll feel able to share your joys without adding a caveat or disclaimer as to how those moments of joy were able to come about. Times you grant yourself the permission to shed the weight of having to explain and justify and prove every little thing about your invisible/chronicallyContinue reading “Dropping the disclaimer”

Content warning: A pretty bleak post, with mention of dying. This post is for me; in the hope it can help me process and let go of certain aspects of a recent terrible day. There are no photos of the worst days. The days where I am bound to my bed, as if the mattressContinue reading “The ‘Dying’ Days”

If you take one thing away from being on my page I hope it’s that you see that a different and a hard life doesn’t automatically equal a bad one. I want people to know life can still be good. And not in a ‘hashtag inspirational’ “You Can Do Anything You Set Your Mind TooContinue reading “Hard ≠ Bad”

To have M.E. is to have a body that is likely no longer able to produce energy at a cellular level properly anymore, amongst countless other things (some known, some still unknown.) To have M.E. is to be dealt consequences for almost every action you make. You might reach a point where there is aContinue reading “The nature of the beast”

…with that inevitable chronic illness twist! Today was meant to be A Big Day. I had plans to go out for lunch with a friend, for the first time since early 2020. He’d done a recce of local places, and my friend and I had booked an outside table, and planned everything down to whereContinue reading “Pub Lunch, but…”

Trying hard to treat myself the way I would treat one of my Poorly Pals if they were struggling a little more than usual. So I’m going hour by hour here at the moment and acknowledging all that I’ve been trying to process this year, in my now-very-overwhelmed little head. • Being without Delores, andContinue reading “One hour at a time”