Every year since 2013 I have held a tea party to raise funds and awareness of M.E. This year is no different. On Sunday 21st May I'll be doing it again. My friends and family meet up to drink tea and eat cake, each donating the price they'd expect to pay in a cafe. We … Continue reading The tea party for M.E.
I've found that since having a chronic illness, I'm meant to accept all aspects of this new way of life. First I have to accept that I am no longer the fit and healthy person I was for the first two decades of my life. Then I have to accept the new, harsh limitations of … Continue reading Worthy of help
I have found that it is the rate of progress that most people struggle to understand. It is so slow that the average onlooker cannot even spot it. But I can and so I'm sharing it with you. I have been working on my walking for years now. Once upon a time I had to … Continue reading Wednesday Walks
I wish I'd had a breakdown of what to expect when getting through an airport before I did it for the first time in January 2016. Of course I had a whole heap of advice from friends who had gone adventuring abroad with the help of Special Assistance. But I've written this post for anyone, … Continue reading What to expect when travelling using Special Assistance
I cannot stress how wonderful it would be if you could set aside just 17 minutes of your day to watch Jennifer Brea's TED talk on myalgic encephalomyelitis. I have included the link below. Jennifer Brea: TED talk Watch it and the share it far and wide. Thank you, Anna
Baseline - the level at which your daily energy supply allows you to do certain activities, each day, with the minimal amount of suffering during or afterwards. It seems my baseline is now at a level that allows me to get out of bed by 11am and stay out of it for the majority of … Continue reading Monotony
The same people who assume I feel tired all the time, assume that I must nap all the time to compensate. Wrong. Firstly, as I've mentioned before I am very rarely tired in the way that you'd imagine. I call that kind of tiredness being 'sleep tired.' Instead I am lethargic, exhausted, worn out, fatigued. … Continue reading Myth Buster