I’m signing off now until next weekend. I have a scheduled post for World M.E. Day on the 12th, but you won’t see much of me until Blue Sunday on the 17th.
I’m looking forward to it but I’ve also got the usual nerves.
We never really know how our symptoms will be on any given day, and that’s us ‘lucky’ lot. For many there is a guarantee that holding a phone and using an internet connection is too far out of reach.
My efforts have always aimed at including as many people with M.E. as possible, but I don’t believe there is anything that is all-inclusive. The depths that the severest forms of M.E. goes to, makes that impossible. As we always do, we will keep them in our minds; tell those who attend our tea parties, about those who cannot participate.
A week on Sunday you will hopefully see people finding and making ways to participate. A blue ribbon on their IV stand. A blue smoothie. Blue pyjamas. Blue blankets. Blue cups and saucers. Blue picnic blankets. That’s the thing about our community; we somehow find a way.
Flexibility is key. The event runs all day, and the posts stay up indefinitely for you to see and comment on at your own pleasure and pace.
Every year though, there are also those who find Blue Sunday jarring. If it’s not your cup of tea (no pun intended) please just sit it out. Find the places online that align with you better.
'M.E. myself and I' by Anna 