invisible illness – Page 10 – M.E. myself and I

Jennifer Brea: What happens when you have a disease doctors can’t diagnose

I cannot stress how wonderful it would be if you could set aside just 17 minutes of your day to watch Jennifer Brea’s TED talk on myalgic encephalomyelitis. I have included the link below. Jennifer Brea: TED talk Watch it and the share it far and wide. Thank you, Anna

Monotony

Baseline – the level at which your daily energy supply allows you to do certain activities, each day, with the minimal amount of suffering during or afterwards. It seems my baseline is now at a level that allows me to get out of bed by 11am and stay out of it for the majority ofContinue reading “Monotony “

Myth Buster

The same people who assume I feel tired all the time, assume that I must nap all the time to compensate. Wrong. Firstly, as I’ve mentioned before I am very rarely tired in the way that you’d imagine. I call that kind of tiredness being ‘sleep tired.’ Instead I am lethargic, exhausted, worn out, fatigued.Continue reading “Myth Buster “

Severe M.E. Awareness Day

I rarely ask you or pester you directly to read my posts or to share my links. It’s not my style. But would you do it for me this time? I get that it’s a lot to ask. There is still a stigma surrounding those two letters M and E and you might not want toContinue reading “Severe M.E. Awareness Day”

The External Effects

This isn’t a pity party or my attempt at fishing for compliments. I’d hope by now you’d know that’s not my way. This is merely the truth as I see it today. The external impact of chronic illness is something I had not anticipated or even considered. In many ways I am more comfortable inContinue reading “The External Effects”

The Fear

I imagine it’s hard for a parent to hear their child say that they’re feeling so poorly they worry they won’t wake up tomorrow; that they feel so poorly they’re scared that they might die in their sleep. There are no tears or hysterics when I say this to my parents. Just a matter-of-fact statement indicatingContinue reading “The Fear”

Stigma

NB. If I was reading this out loud I might get a bit ‘shouty’. I am developing quite a large chip on my shoulder and it is all your fault. Well society’s fault really but let’s not waste time splitting hairs. If I didn’t have the ‘M.E. label’ medical professionals would surely be atContinue reading “Stigma”