Category Archives: invisible illness

Waiting. Still waiting. I’m not entirely sure why but my most recent appointment with the doctor had me fighting tears. Crying during appointments has happened many a time before but never with my current GP because, to be frank, she treats me better than any other GP has over the course of my illness. SureContinue reading “Waiting. Still waiting.”

Because of ignorant comments like this that are said by people who have an outdated and harmful view of M.E. So despite the current restrictions of my health, I will be holding another Blue Sunday tea party, when I should perhaps be giving it a miss this year. The writer of those comments is sadlyContinue reading “Why do we STILL have to raise awareness in 2017?”

I want to tell you about an experience I had in Mallorca in January this year. We were on one of our wheelchair adventures, on the hunt for a pit stop that involved cake.  A young man was standing outside one tapas bar politely drawing the attention of passers by to his particular eatery. ItContinue reading ““Oh you can actually walk.” “

Every year since 2013 I have held a tea party to raise funds and awareness of M.E. This year is no different. On Sunday 21st May I’ll be doing it again. My friends and family meet up to drink tea and eat cake, each donating the price they’d expect to pay in a cafe. WeContinue reading “The tea party for M.E. “

I’ve found that since having a chronic illness, I’m meant to accept all aspects of this new way of life. First I have to accept that I am no longer the fit and healthy person I was for the first two decades of my life. Then I have to accept the new, harsh limitations ofContinue reading “Worthy of help”

I have found that it is the rate of progress that most people struggle to understand.  It is so slow that the average onlooker cannot even spot it. But I can and so I’m sharing it with you. I have been working on my walking for years now. Once upon a time I had toContinue reading “Wednesday Walks”

I wish I’d had a breakdown of what to expect when getting through an airport before I did it for the first time in January 2016. Of course I had a whole heap of advice from friends who had gone adventuring abroad with the help of Special Assistance. But I’ve written this post for anyone,Continue reading “What to expect when travelling using Special Assistance”