Category Archives: invisible illness

Sometimes there is absolutely no rhyme or reason for why the symptoms are worse & that can be the hardest part of this journey; accepting what simply cannot be explained or understood. The poison-in-my-veins feeling is the one that floors me more than the fatigue or the dizziness or the nausea or the sensory overloadContinue reading “7 years”

I have lost the ability to make decisions. I find them quite distressing. Simple choices have come to feel as if they are the most important decisions in the world. I don't know why. Perhaps it is a lack of confidence; that I have lost confidence in my physical and cognitive abilities, so how canContinue reading “Decisions, decisions”

Every now and then I have a complete crisis of confidence. Not regularly, and not for very long, but every now and then.  I question why on earth someone like him would choose someone like me. I wonder if my friends have only stuck around through pity. I struggle to see myself as more thanContinue reading “Self worth “

It can be hard not to feel pathetic sometimes. If I have big plans in the evening, and by big plans I mean leaving the house, I tend to spend all day just sitting and waiting.  It would be lovely to be able to potter around beforehand, but my energy is so precious that IContinue reading “Pathetic “

Thank you for all of the well wishes ahead of tomorrow ☺️ I’m feeling very organised and grateful to my little team of helpers. It’ll be a BIG day for me and I will struggle for a while afterwards but it is always worth it and I feel very strongly about raising awareness of thisContinue reading “The Final Countdown”

The baking has started, the tea sets are out of storage and the information leaflets have been printed off.  If you’d like to follow Blue Sunday on social media, I will be using the hashtags #BlueSunday and #teapartyforME and posting pictures and videos on the Facebook event. Any donations of the price of a pieceContinue reading “Tea party prep”