People wonder what I do all day. The truth is I’ve learnt to be very good at just sitting. No TV, no music, no reading, no iPad. Just being. I still don’t nap & I somehow never feel bored. I guess I’m too busy trying to stay calm while my body screams and shouts at me constantly.
I feel lucky that I’ve managed to learn to just be.
If you asked me to list my symptoms right now I’d struggle to; they’ve become so normal and so much a part of me that on days like today (neither a good nor a bad day) I can zone out on them completely.