Sometimes there is absolutely no rhyme or reason for why the symptoms are worse & that can be the hardest part of this journey; accepting what simply cannot be explained or understood.
The poison-in-my-veins feeling is the one that floors me more than the fatigue or the dizziness or the nausea or the sensory overload or any of the other symptoms from a list that takes up multiple pieces of A4 paper.
My life was very different 7 years ago. I had a handful of part-time jobs, was a fresh-out-uni History graduate, a sociable little thing. The 1st four or so years of being ill were unimaginably gruelling and such a stark contrast for the life I’d had for 20 years. But now I can say with confidence that life feels good, even on days like these.