Life in the slow lane

'M.E. myself and I' by Anna Redshaw

I need your help…

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Anna Redshaw

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The countdown to this year’s M.E. awareness week is well and truly on.

Every year at my Blue Sunday tea party I make information leaflets to go on each table and fact cards to place around the room. This year will be no different but I’d like your help in going a little further.

Raising true and accurate awareness is why I started the tea party and every year I try to keep this up. With this in mind I’d like to have examples of the ignorance we have faced as M.E. sufferers.

So I ask you to complete this sentence:

Ignorance towards M.E. is…

Be it comments from family members questioning how one day you can do x y and z and yet the next you can do very little, medical professionals belittling your most terrifying symptoms or strangers in the street objecting to you using a Blue Disabled Badge. You can remain anonymous or I can attach your name.

Please do get in touch. Blue Sunday is for you.

7 responses to “I need your help…”

  1. Mookpixie Avatar
    Mookpixie

    Ignorance towards ME is often as devastating as the illness itself.

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    1. theslowlaneme Avatar
      theslowlaneme

      Quite. Thank you Mrs Mook

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      Reply
  2. Anne Mayo Avatar
    Anne Mayo

    Ignorance to M.E. Is a good friend repeatedly saying you’ve been misdiagnosed and that you need to stop sleeping so much

    Liked by 1 person

    Reply
    1. theslowlaneme Avatar
      theslowlaneme

      Thank you Anne

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      Reply
  3. Clare Jay McCarthy Avatar
    Clare Jay McCarthy

    Ignorance towards M.E is… NICE taking 2 years to review guidelines while leaving GET and CBT as the only advisable treatment options for GPs to give us, despite ample evidence of it causing irreversable harm to most patients. 😦

    Liked by 1 person

    Reply
  4. Toni Avatar
    Toni

    Ignorance towards M.E by “highly educated medical professionals” in this day and age is dispicable and unforgivable, they should be pushing for awareness and research, not us the sick patients. To then have the Government (clearly specialists in the field of M.E) dictating that we should be labelled MUS and refused treatment or investigations makes me feel sick to my stomach.

    Liked by 1 person

    Reply
  5. David Gordon Avatar
    David Gordon

    …like an unexpected second wave of torture as if you were having a really bad dream .

    Liked by 1 person

    Reply

Leave a reply to Clare Jay McCarthy Cancel reply

Hello,

I’m Anna

Welcome to M.E. myself and I, my tiny little corner of the internet where I share snippets of life in the slow lane. You’ll also find all things Blue Sunday here, the annual fundraising event I started in 2013 to raise awareness of M.E., include people living with the illness, and raise money for the M.E. charities who support us.

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