I need your help…

The countdown to this year’s M.E. awareness week is well and truly on.

Every year at my Blue Sunday tea party I make information leaflets to go on each table and fact cards to place around the room. This year will be no different but I’d like your help in going a little further.

Raising true and accurate awareness is why I started the tea party and every year I try to keep this up. With this in mind I’d like to have examples of the ignorance we have faced as M.E. sufferers.

So I ask you to complete this sentence:

Ignorance towards M.E. is…

Be it comments from family members questioning how one day you can do x y and z and yet the next you can do very little, medical professionals belittling your most terrifying symptoms or strangers in the street objecting to you using a Blue Disabled Badge. You can remain anonymous or I can attach your name.

Please do get in touch. Blue Sunday is for you.

Categories invisible illness

7 thoughts on “I need your help…

  1. Ignorance towards ME is often as devastating as the illness itself.

    Like

  2. Ignorance to M.E. Is a good friend repeatedly saying you’ve been misdiagnosed and that you need to stop sleeping so much

    Liked by 1 person

  3. Ignorance towards M.E is… NICE taking 2 years to review guidelines while leaving GET and CBT as the only advisable treatment options for GPs to give us, despite ample evidence of it causing irreversable harm to most patients. 😦

    Liked by 1 person

  4. Ignorance towards M.E by “highly educated medical professionals” in this day and age is dispicable and unforgivable, they should be pushing for awareness and research, not us the sick patients. To then have the Government (clearly specialists in the field of M.E) dictating that we should be labelled MUS and refused treatment or investigations makes me feel sick to my stomach.

    Liked by 1 person

  5. …like an unexpected second wave of torture as if you were having a really bad dream .

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this:
search previous next tag category expand menu location phone mail time cart zoom edit close