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People ask because they care. It is lovely that they care. We are grateful and thankful. I am incredibly lucky that so many do care. It is a question, however, that has begun to fill me with dread and unease. How on earth does a person who feels so poorly everyday, answer such a question?Continue reading “How are you?”

Purple time!  I call it purple time because when I was completing my activity diary for the CFS/ME clinic I had to colour my periods of proper rest in purple crayon. I was embracing my child-like state!  Proper rest (or purple time) is a period of time, maybe only a few minutes long, when IContinue reading “What time is it?”

I am in the process of retraining my silly, broken brain. It is as if the power plug was pulled out before all of the important documents were saved. For example my brain seems to have forgotten that night time is for sleep, it struggles to regulate my temperature, forgets to walk in a straightContinue reading “Rehab”

Less than two months after graduating from university I started to feel ill. I had commuted from home during my last year at university and worked part time as a nanny and helping out with the family business. I had been busy. My body decided it needed a rest. It had a massive strop! ItContinue reading “And so it began”

So I have no real idea how this works or what I am doing so be nice! Shall I start with an introduction? A bit about me? Well…I am 23 years old but 24 in November, and, in true Anna Jones style, I am already excited! I have a degree in History. Modern History wasContinue reading “Welcome to my world!”