#Chronicillness #invisibleillness #mecfs #cfs #NeuroME – Page 2

Getting it right

I got life right today • Not brushed my teeth, but put lipstick on • Not showered, but 50% sure I put deodorant on • Dressed, but not wearing a bra and still in yesterday’s pants • No idea what we’re having for tea, but WENT TO SEE THE LAMBS Priorities people . Priorities. Can’tContinue reading “Getting it right”

Real Talk

My friends, it doesn’t happen very often, but every once in a blue moon, I have a day where I wonder if this is really IT. If life is really going to be like THIS. Today, as I came to rest in bed after having my sister and nephew visit, I questioned whether my lifeContinue reading “Real Talk”

How does the virtual tea party work?

You’ll probably have heard by now that I’m getting organised for my M.E. awareness week tea party already. Alongside the in-person event in Stamford, Lincolnshire (please do get in touch for more information if you’d like to join me in person) I will again be hosting a virtual tea party online. It’s quite simple really.Continue reading “How does the virtual tea party work?”

Get Well Soon < Hope you have easier days ahead

I am feeling very poorly, even by my standards. But I am also feeling very loved and understood. Recently, I have noticed how so many of the people around me now seem to grasp that Get Well Soon doesn’t fit here. I won’t be getting well soon, but you hoping for better and easier daysContinue reading “Get Well Soon < Hope you have easier days ahead”

What have tea and cake got to do with M.E?

In my experience it can be difficult to get non-sufferers to properly engage with M.E. advocacy efforts. There can be many reasons for this. Perhaps they find it upsetting to think of the depths of their loved one’s suffering. Or they don’t have M.E. themselves so can feel too far removed from it all. Sadly,Continue reading “What have tea and cake got to do with M.E?”

Silver Linings

I am a firm believer that more often than not, silver linings can be found on the edge of every dark grey cloud. I can’t make a blanket statement about how Every Cloud has a Silver Lining, but I do think there are there most of the time. I’ve spoken about this on M.E. myselfContinue reading “Silver Linings”

Blue Sunday – The Upgrade

I still can’t quite believe the response I’ve had for my M.E. Awareness week efforts. Sorry if I sound like a broken record, but I just can’t believe it. It almost seems a bit silly and over the top. Are people being serious when they send me such lovely messages or are they having a laugh,Continue reading “Blue Sunday – The Upgrade”