I am feeling very poorly, even by my standards. But I am also feeling very loved and understood. Recently, I have noticed how so many of the people around me now seem to grasp that Get Well Soon doesn’t fit here.
I won’t be getting well soon, but you hoping for better and easier days ahead for me is such a lovely thing for me to hear from you. With that, an acknowledgment of how hard things must be is also such a strangely wonderful thing for me to hear.
Your understanding and acceptance of my reality is what makes the biggest difference to me. I’ve said time and time again that I share my journey not for sympathy, but in the hope I might get true understanding.
I know it can be sad for you to think that Get Well Soon doesn’t quite fit for me. It’s totally okay to feel sad about something that’s sad. M.E. is so far from the normal, temporary sickness the majority of people will experience, where you’re back on your feet after a week or two. But I’m not sad. Not at the moment. I have such a good little life that I’ve been able to mould around the restrictions placed upon me by faulty energy production. My life is hard and different and it can be very frustrating, but it is good. I feel lucky to be me. And I’m okay in myself, as tends to be my answer when asked that dreaded “How are you?” question.
I get a shock too, when I think of how much time has passed and how my incredible progress is still really only a drop in the ocean in conventional terms. But mates, more often than not I can peel the top off a new pint of milk AND unscrew the lid off the coffee jar by myself. What more could a person want?!