In September 2010 it was my vision that ‘went funny’ first; my very first sign that something was off. It has been my most dominant and consistent symptom ever since.
It’s so hard to explain how it is, and the photos on this post are the closest I can get to showing what I see.
Blurred vision
Zigzag lines across my vision
Out-of-focus vision
Eye floaters
White flashes behind closed eyes
Eyelids that flicker when closed
A constant aura-like blur around the edge of my vision
I do also have a diagnosis of ‘migraine with aura’ and initially assumed I must be getting a migraine. But it is quite different, not least because I lose my vision completely when I get a migraine.
No tests have showed up anything untoward. I’ve need glasses since I was 7 and need a strong prescription. But with a correct prescription and regular checks all that’s been said is that if M.E. is affecting every muscle and every cell in the body, then the muscles and cells in my eyes must also be affected.
I often don’t notice it now, but since December it’s been harder to ignore. I’m begrudgingly going back to the optician next week* (my first port of call because a GP always sends me back there so I’m preempting it again).
Appointments like this feel pointless. I’d bet good money on things seeming healthy and normal. Every referral for every symptom I have ever had has produced nothing. But it’s only right to check these things out isn’t it.
*Yes I know they do home visits
'M.E. myself and I' by Anna Redshaw 