It was an absolute pleasure to chat away about Decode ME Study this week for Elinor Brown’s YouTube channel.
The most important ME/CFS study EVER? Taking part in Decode ME.
It’s my YouTube debut and quite out of my comfort zone, so hoping I’ve done okay! Please check it out if you can.
If you haven’t signed up already, you have until Wednesday 15th November to take part and complete the questionnaire http://www.DecodeME.org.uk
I’ve had the pleasure of seeing a bit of the ‘behind the scenes’ with Decode ME. Without any pressure or obligation to contribute, I’ve been a (very quiet) member of the team who might proof read or check things over from a patient’s perspective.
To witness how valuable and essential the input of people with M.E. has been for this study has been one of the best experiences of my whole poorly life.

Captions are available.
