Bed days
Bed days involve DVDs if I’m lucky and a hell of a lot of Purple Time. I might make it downstairs once to stock up on snacks. Each evening I always make sure there’s enough to drink in my bedroom incase I’m not able to get downstairs the next day and there’s no one home to bring me one. My family (or slaves if you like) tend to deliver my dinner/tea on a tray.
I’m not able to use my iPad or my phone very much/at all on these days. The cognitive function required to do something as simple as send a short text message just isn’t there.
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It makes me sad sometimes to have to eat in bed by myself. But needs must. I can’t manage to sit downstairs and the ‘hustle and bustle’ of having just one person in the room is incredibly draining. Bed days are solitary. They can also be quite sad, but not often because I’m a right battle axe!
Next time you go up and down the stairs think about what that takes. You need good balance. You need enough momentum behind you to lift each leg – to push off and make the next step. If you’ve been mostly immobile for a fair while you won’t be fit either. This plays its part too.
In the Summer there are Garden Bed Days. This outdoor furniture is probably the best thing I’ve ever bought.
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'M.E. myself and I' by Anna Redshaw 
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