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While I am making incredible progress I feel it is important to remind you that I am still so very poorly and so far from a normal, healthy life as society sees it.  You might remember that I managed a little holiday this Summer. Well, while we were away in Cromer at the end ofContinue reading “Friday Fright Night”

All I’ve really, REALLY wanted for the last six years has been a bit of normality; a bit of the Real Life that I’d lived for 21 years but I couldn’t be a proper part of anymore because even leaving the house for an hour would have a chain reaction on my health and writeContinue reading “Normality”

Although it’s been some time since I mentioned it, you may remember that I am currently on a quest to see if I have Periodic Paralysis on top of the usual and delightful M.E. symptoms. London CallingThe National Hospital of Neurology and Neuroscience My Wonder GP referred me to the National Hospital of Neurology andContinue reading “Periodic Paralysis?”

My name is Anna Jones, I am not yet 28 years old, and I have just applied to have an Adult Social Care Assessment.  This is quite far away from how I imaged life would be. Just 10 years I was winning awards for ‘sporting prowess’ at school. I’d been netball captain for 7 years,Continue reading “Biting the bullet”

I have banned myself from doing any housework, even though each little bit I managed was cause for celebration. A couple of weeks ago I had an almighty panic attack out of the blue, as you may have read in Outpouring. Since moving out of my parents care I have been piling the pressure onContinue reading “Getting over myself”

I have been fortunate enough (or perhaps foolish, when you think of how exhausting my body finds being out of its comfort zone) to have had a few little holidays crammed into the last few months.  I don’t need to be told how lucky I am to have been able to manage such a meanContinue reading “Away Days”

I will be frank. Last night I had an almighty panic attack. I haven’t had many of them before and they are only something I have experienced since being ill. So today I am frail and fractured and fragile. I felt it coming, so much so that I told Mr Tree Surgeon before it hitContinue reading “Outpouring”

Today, the 10th September, marks 6 years since the start of my M.E. Years.  And it doesn’t feel as bad as I thought it would.  To say that life has not gone as I thought it would seems somewhat of an understatement. I have long forgotten what it’s like not to wake up poorly andContinue reading “The girl who was”

Today (apparently) marks two whole years since my last stint in the dining room.  If you’ve only recently joined my ‘M.E. myself and I’ journey this may well mean absolutely nothing to you, but quite simply, there was a time during the last few years when I was too unwell to walk up or climbContinue reading “Those Dining Room Days Revisited”

I am a bit nervous to go home today. It feels a bit silly to feel like this. But the other day, when the postman was ringing our doorbell & I was too poorly to get out of bed to answer the door, I overheard the woman next door say something about me in aContinue reading “The perceptions of others”