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While I am making incredible progress I feel it is important to remind you that I am still so very poorly and so far from a normal, healthy life as society sees it.  You might remember that I managed a little holiday this Summer. Well, while we were away in Cromer at the end ofContinue reading “Friday Fright Night”

All I’ve really, REALLY wanted for the last six years has been a bit of normality; a bit of the Real Life that I’d lived for 21 years but I couldn’t be a proper part of anymore because even leaving the house for an hour would have a chain reaction on my health and writeContinue reading “Normality”

Although it’s been some time since I mentioned it, you may remember that I am currently on a quest to see if I have Periodic Paralysis on top of the usual and delightful M.E. symptoms. London CallingThe National Hospital of Neurology and Neuroscience My Wonder GP referred me to the National Hospital of Neurology andContinue reading “Periodic Paralysis?”