I am officially no longer classed as a severe sufferer. I am in recovery.
My appointment with the CFS/ME clinic was this morning and they are incredibly pleased with my progress so far.
It was a positive experience on the whole and so refreshing to be talking to a medical professional who genuinely understands our complex condition.
I am yet to process everything that was said and talked about and some of it has left me confused and a little flat, but on the whole it was wonderful to know that I am doing so well. The difference between me now and me when they first saw me in January 2011 is incredible.
We mostly chatted about how I am taking what I learnt from the programme in 2011 and applying it to my life. I am apparently doing everything correctly, for me. I ‘get it’ and understand my condition, I have the ‘correct’ attitude and have physically improved beyond recognition.
I have accepted it…
It’s been a happy day for me and my family. We’re very realistic about it all (I might be in recovery for ever and make no further improvement, etc) but for today it’s lovely to have and enjoy some positive and good news. I am of course still very, very poorly but I am better than I was 🙂 I don’t really want to think about what lies ahead as the road to recovery is ridiculously long and difficult and I might never get to the end of it, but at least now I know I am taking my first steps in the right direction.
I was reminded to have days off from the hard work of rehabilitation and to always be kind to myself. I was reminded that down days are okay. Basically today’s session showed me that, despite what the doctors think, I am doing everything I should be to make some kind of recovery. If the rehab programme had/was a test then I would get an A* apparently.
I am so lucky to have the clinic’s support. It seems to be the norm to have no clinic to be referred to, so I am the exception. Thank you to everyone close to me for their continued support over the last couple of years. Today’s good news is down to my hard work, determination and perseverance, but it’s down to each of you too. I could never have come this far without you all.
There may no posts for a few days now but like I said yesterday, I still have so much to cover. This week needs to be a quiet week for me to try to avoid suffering a serious setback after my birthday couple of weeks. But as Arnie says, I’ll be back!