Category Archives: invisible illness

Wednesdays have become my favourite. If you follow me on Instagram you’ll probably know that already. This year I am endeavoring to make the most out of them. They are the days I have completely to myself. I can do as I like, if and when my health allows. Some Wednesdays I treat as aContinue reading “Wild Wednesday”

Blue Sunday is just a month away! 💙💙💙 Thank you to the ME Association for my new t-shirt. So many of us are so restricted by our health that we cannot take part in the vast majority of fundraising events but still want to do something to raise money and awareness of our health condition.Continue reading “Getting organised – Blue Sunday 2019”

So I usually start my tea party prep in January but I have had to scale things back quite a lot this year. Moving house in October has taken up a considerable amount of my precious energy. Every year since 2013 I have, with a huge amount of help from my family, held a teaContinue reading “Blue Sunday 2019 – the tea party for M.E.”

She has seen me the morning after a night out, bleary eyed and shuffling around our shared university halls kitchen barely stringing a sentence together. She has seen me dancing as if no-one is watching, probably making an utter fool of myself in doing so, sometimes without even a drop of alcohol in my systemContinue reading “Friendship”

I may not have a job but I’d say I have a full time occupation! It’s rehabilitation of sorts. Activity Targets, for me, are simple things like “Brush my teeth”, “Wash my face”, “Shower”, “Wash my hair”… Putting a tick in those boxes does not happen every day but during times when my life feelsContinue reading “Back to basics”

Christmas came to an abrupt and harsh end yesterday when I received a letter from the Department of Work and Pensions summoning me for a medical assessment as part of my Personal Independence Payment renewal claim. I have been a part of the Disability Benefits system for almost 8 long, weary and terrifying years now.Continue reading “White letter of doom’”

There’s a story behind this cheap and cheerful tree. It came into my life when my days were spent mostly alone in my childhood bedroom. I’d eat up there while my family ate at the table downstairs, being too unwell to get down there to join them and not being well enough to manage theContinue reading “Pinching myself”