WEGO Health Award Nomination

Thank you to whichever kind soul/s nominated me for a WEGO Health Award. I’m up for Best in Show: Blog, the same category as Our Hayley I believe! 

If you’d like to vote or just check out the other nominees you can do so by clicking the link below. 


I open you’ve all navigated your way through the festive season okay. PJs and TV catch-up have been the order of the day here. Must try to get back into some kind of routine! 

Health doesn’t equal happiness

The highs and lows of 2014

  • Meeting a poorly pal.

Slanket capes and joint Purple Time! 

It was just the best! To have been chatting online and texting someone for so long and then finally there they are stood on your doorstep! And they understand absolutely!

It broke my heart a bit. To see her suffering and struggling. And knowing how it feels to feel like that. It was the strangest feeling. I said the things that I’d promised myself I never would – because I myself cannot answer them. Things like ‘How are you?’ ‘Do you think it’s making a difference?’ ‘I hope you’re okay’ And I don’t know why I asked because of course she’s not okay! She has severe M.E. I hoped so much that I didn’t wear her out. But of course I must have! Just being out of her house and in mine would have done that. And it wasn’t just a five minute journey she had to contend with. 

So now I know how you must feel – or at least how you felt in The Beginning. When you first met the new, poorly me. This is how you must feel when you see me or think of me and my health. Desolate. Unable to really help. 

But I can only do my best for her – offer her my friendship and my time and energy. And that’s all I want from you – a weekly text message or a daily joke or a card in the post. That’s all any of us can really do for our poorly pals. 

  • JustGiving Award nomination
  • Blue Sunday 
  • Old and new friendships in general – I was reunited with an old school friend this year and it felt like no time had passed whatsoever!
  • Countless lovely messages, tweets, and comments about my blog and my awareness efforts
  • Family

Practically-older bro, Not-so-big sis, me, and Not-so-little bro

  • Having the physical strength to allow my hair to grow and being able to wash and brush it myself

My locks are now so long and luscious that I can pin them up again!
  • Seeing things through their eyes – a couple of my old housemates noticed little things that I had missed. I didn’t need to put my feet up on a chair while sitting in a coffee shop like I’d had to before! And I’m apparently much more expressive with my hands when I’m talking! My hands rarely lie limb in a claw-like position on my lap.
  • The online community – the ultimate high!

  • Allan 

We lost Our Allan suddenly and unexpectedly in August, just shy of his 60th birthday. I’m sure he would LOVE that we keep using his Princess photos when we talk about him!

  • Dining Room Days – life is full of surprises but I wasn’t expecting this one so ‘far’ into my recovery journey. Curse those stairs!

So here’s to a happy 2015 for us all. We may not get a healthy one but here’s hoping it turns out to be at least a tiny bit healthier than this one.

Foreign Territory

I feel like I’m doing a kind of social experiment now!

So I’ve been on an online dating site for a week now.

If someone messages with ‘Hi, how are you?’ I’m not massively impressed. Whereas if it’s clear from someone’s message that they’ve read my profile I will always reply. I’ve been asked on five dates. I’m not keen on meeting a couple of them because they haven’t made any effort to get me first and I don’t have energy to waste here people. I’ve told one I can’t possibly meet before Christmas. He says he’d like to wait. He thinks it’s because Christmas is busy because of our family business. It’s half true!

Of the five men who’ve asked me out (how hilarious is that?!) I’ve only told two of them that I have Myalgic Encephalomyelitis. (I haven’t uttered those two letter M and E on purpose.) One man dissected the words to work out what they meant. I mentioned mitochondrial failure and he instantly knew I must have a depleted energy supply. He’s asked a few questions but it doesn’t feel like an issue. Yet. He doesn’t ask if I’m tired, rather if my energy levels are okay. Should we clone him???

So how am I finding it?

A bit scary and overwhelming. But enjoyable. I think it’s important to be out of your comfort zone once in a while. But only if your health can cope!

Even just messaging is wearing me out but I’m quite excited. The adrenaline realised however is proving problematic. Adrenaline is exhausting. It’s going to be my biggest challenge I think. It’s a big reason why I’ve avoided this whole thing! I think I suffer from adrenal fatigue…

Adrenaline can feel toxic and like poison. I can actually feel the nerves in my arms, for example, prickling as its released. It’s a bizarre feeling – to feel like you can feel the adrenaline rushing around your body.  Excitement triggers it. Nerves trigger it. God help me if/when the day of my first date comes around.

Raining on my parade

So there’s a nice man who I’ve agreed to a date with. (It all seems very fast. And just like that the excitement was gone. Trying to find a date and time around his work and my need for days of rest inbetween plans…sorting it out just wasn’t fun anymore. I’ve been quite honest with him. You almost have to do the commitment chat before you’ve even met! “Look I know my health might seem full on so I completely understand if you’d rather nothing came of this…”

I think, to date me, would be a huge compromise for many people. There is so much I cannot yet do. Day trips to London. I can’t go for long walks. I can’t go for any kind of walk without payback and pain. Sleepovers…

Many people will think this is a hare-brained scheme. That I’m too poorly to date. That my energy supply rarely allows me to spend time with my friends never mind trying to juggle a new person in my life.

And I’m laying here wondering if they’re right. What on earth am I doing?! If nothing else, I’m testing the water.

I’ll keep you up to date.