Author Archives: Anna Redshaw

I can’t afford to cry or get upset. If/when I do the emotion completely writes me off. It is beyond my control. A family member was recently in hospital and, although I didn’t cry, the emotion and worry of it all knocked me for six for days. I have always liked to know the endContinue reading “Emotional=wreck”

Today is a poorlier day than yesterday. I keep an activity diary but I cant see that I did anything more than usual in the last few days. Ho hum. Life with M.E is full of surprises! This afternoon I’ve been struggling to sit up. Sitting up…sometimes I can’t manage it because my core musclesContinue reading “Wild nights in”

Who am I now? If I had to define myself now I would really struggle. Of course I am a daughter, a sister, a friend, a cousin and I am so lucky and happy to be those things. But I don’t know what else I am. The things that defined me as a person areContinue reading “Identity”

http://www.butyoudontlooksick.com/wpress/wp-content/uploads/2010/02/BYDLS-TheSpoonTheory.pdfThe Spoon Theory has been really useful for explaining things to my friends and family. I have also tried to liken my life with M.E to a near-empty bank account. You have to spend your money very wisely and carefully to make it last. If you dip into your overdraft, the interest is extortionate andContinue reading “Anyone got a spare spoon?”

In the same way that it is impossible to eat a 9 inch pizza in one bite, it is impossible for me to perform tasks in one go. It is now necessary for me to break down my day into more manageable chunks, in the same way that you cut a pizza into slices.  Take ‘getting ready’Continue reading “Bitesize”

Yesterday the pain is my hands was pretty bad and so I was unable to type properly and upload a post. Today it is a little better. Everybody has aches and pains at one point or another, but with this condition it is yet another symptom to contend with. Pain-wise I know that I getContinue reading “Ouch!”

Noise sensitivity. I have always been as blind as a bat and now it seems I have supersonic hearing like they do. The door knocker on our front door not only makes me jump, but is incredibly loud. It can take me a while to get over the shock and noise (which leave me unableContinue reading “Shhhhhh”